‘pkd’ Archives
Big Gulp
I feel like there’s a bit of pressure to come up with a post filled with post-transplant gravitas. I should be writing about the extraordinary circumstance of having received a kidney transplant and how life has some grand new meaning. In time, perhaps. For now, I can [Read More]
Overly Dramatic Highlights from Day 3
Getting two rounds of blood transfusions today due to low hemoglobin. Going right into my comfy neck IV. [Read More]
New Kidney
It really hasn’t hit me yet. Developments unfolded quickly. Late Sunday night into Monday morning, I had just a couple of hours to figure out a month’s worth of pet-sitting (or at least take a first crack at it), figure out what to say to my manager at work, and [Read More]
THE CALL PART TWO
Literally, this is what I writing shortly before 11:40PM tonight… Just a vent before a scheduled 5-day workweek. Dear Universe, please engineer a situation that provides me with a donor kidney from the Charlotte area ASAP. This doing hemodialysis three times a week [Read More]
Divorcing Duke
I quit working there back in November, and now I am symbolically leaving their kidney transplant program. I have now officially had my 1169 days of “waiting” on Duke’s transplant list transferred to the medical center that’s in the big city in the [Read More]
Divorcing Davita
I’m home an hour early this evening, having had Davita take me off treatment prematurely. On the paper I have to sign that says I wanted to be taken off, I gave as my reason that I had zero trust in the staff and needed to find either another shift or another [Read More]
Dueling transplant lists
Everyone at Carolinas Medical Center is so much nicer than folks at the big med center in Durham. The choice of where to have my three years of transplant waiting counted would seem like a no-brainer, considering it is still true that wait times are slightly less at CMC. [Read More]
Raw follow-up
That was a bit unhinged. But, guess what? I am completely overwhelmed and exhausted, and there’s not an ounce of relief in sight. So I vented in here, as I am prone to doing. And I’m sure I’ll do so again. And maybe I’ll do it a lot. If it seems like [Read More]
Raw reasons why I’m pissed off
1. Neighbor was playing drums at 12:30AM. 2. Duke Transplant is concerned that I have articulated a mistrust of their organization. Perhaps that has something to do with the various episodes of incompetency I experienced back in January after my nephrectomy. Without [Read More]
The Call: The lingering mess
I figured I would write at some point about what went on behind-the-scenes with Duke and CIGNA last Wednesday. However, after five exhausting days of aggravation and fact-finding, I can’t write a definite narrative of what happened. Writing a detailing accounting [Read More]
